aphasia handbook

The Aphasia Handbook
Susie Parr, Carole Pound, Sally Byng and Bridget Long. Connect Press

The Handbook came about as a direct result of listening to people with aphasia talk about their information needs. Fifty people with experience of long-term aphasia took part in in-depth interviews in which they described their experience of losing language.

For many, the lack of information that was relevant to their concerns was a major obstacle. They described the frustrating experience of being given information at the wrong time or in a form they could not understand.

Many felt they had been given information when they could not take it in, and they had no way of re-visiting it. Some found that their aphasia made it difficult for them to make some initial enquiries: 'You cannot always ask...'. Access to information was severely restricted.

Susie Parr, Carole Pound and Sally Byng of City Dysphasic Group (CDG), Department of Language and Communication Science, City University (now Connect), joined forces with designer Bridget Long of The Design Works, Reading to produce a publication that would go some way to meeting the needs and concerns expressed by people with aphasia.

The aim was to present relevant information in an accessible form directly to people with aphasia themselves, as well as their friends, families and helpers. The Aphasia Handbook was developed over a two-year period of collaboration and co-operation. The authors consulted extensively with people who have aphasia and professional and lay experts in order to refine its content, style and presentation.

The result is a colourful, stylish publication widely praised by people who have aphasia, and by others.

 

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'[The Handbook] is exciting to look at, imaginative and very colourful& a mine of information& Let's get this handbook out into the hospitals and make the survivors feel they are not abandoned&'
Alan Hewitt, Secretary of Speakability (formerly ADA) Nottingham in Aphasiology

'I think all the people involved in producing this handbook have done a wonderful job&'
Don Simpson, Dysphasia Support volunteer

'I am very happy at your book, it is great. I am so happy that I can read some words, some small, small parts. well done!'
John Wharton, member of City Dysphasic Group (now Connect)

'It looks terrific. Very simple and easy to use with lots of really good information.'
David Ellis, Social Services Inspector

'This Aphasia Handbook contains a vast amount of invaluable information and reflects a staggering amount of intelligent research. All together this is a book I see as admirable and indispensable to all concerned with aphasia in any way. Most GPs couldnt give patients more than a small fraction of this information and almost certainly wouldnt have the time and opportunity to transmit it to a person with aphasia. The book, besides being of great value to an aphasic patient, could be of immense value to those nursing, caring or looking after such a patient at home or in hospital.'
Professor RW Lacey, MD FRCPath

'An invaluable resource for patients who struggle to communicate, their families, and the professionals and volunteers who work with them.'
Dr Elizabeth Lee, GP