Main navigation

You are here: Publications / Publications for people working with people with aphasia / l) Including People with Communication Disability in Stroke Research and Consultation


l) Including People with Communication Disability in Stroke Research and Consultation

A guide for researchers and service providers

Communication tips for making research interviews and conversations productive. Practical suggestions to make research documentation accessible. Help and encouragment to ensure everyone can share their views and experiences with you. Ideas and inspiration to make your stroke research and consultation inclusive.

How it helped

'This book helped us in a practical way by showing us different ways we could present information to make it easy to understand. It was particularly helpful to understand about the different ways people take information in, and give information out, and the ways in which we could facilitate those processes'.

'The guide was invaluable in showing us how people with aphasia can be involved in our research in a way that is meaningful for both them and us'.

Jenni Brooks, Research Fellow, Social Policy Research Unit, University of York

Jan Pringle

'The support from Connect was fantastic and both the training and this book gave me confidence that I was on the right track’. Jan Pringle

When CHSS Stroke Nurse Jan Pringle embarked on her post-graduate research project she wanted to include people with stroke in her study, but not just people who could speak with ease.

Her research, ‘The early discharge experiences of stroke survivors and their carers’ – was about what people with stroke experience in those first days at home after a stay in hospital. She began with a preliminary literature review to find out what had already been done in this area of research and she was amazed to find that less than 4% included people with communication disability.

It gave me pointers to get me started and made me push myself to get it right.

Even as a stroke nurse with many years of experience, Jan felt apprehensive about embarking on interviews with people with aphasia so she turned to Connect for help. She attended a training course and used the book ‘Including people with communication disability in stroke research and consultation’ as a guide.

'I am disappointed that researchers can even consider not including this very important group. After all, about a third of people with stroke have aphasia. It is not necessary to exclude people with communication disability who have as much right to be involved as any one else.

And I’m sure that including people with aphasia in this research, helped to get ethical approval'.

Coming home with stroke: a journey of discovery
The early discharge experiences of stroke survivors and their carers: a preliminary study. Pringle J, Hendry C, McLafferty E, Nicholson L
The University of Dundee, supported by Chest Heart and Stroke Scotland

Sample contents page:

Including People with Aphasia in Stroke Research sample contents page (248 kb)

Back to all publications

Add to basket

Published price:

Publication date:
01 March 2007

For bulk orders please contact us.

ISBN 10 digit

ISBN 13 digit