Having a Say and Making Sense

What the projects were about

  • The experiences of communicating and making decisions in health care for people with communication disabilities and service providers.
  • What resources might help people with communication disabilities and service providers to communicate more effectively in health care settings?.

What the projects found out

  • The first project - Having a Say - explored the perspectives of people with communication difficulties and service providers. It identified problems and also found out what helped.
  • The second project - Making Sense - explored the experiences of a wider group of people with communication difficulties and of carers.
  • A blue-print for a resource to support communication in GPs surgeries is being developed.

Who worked on the projects?

  • Sharon Farrelly from City University
  • Sally Byng from Connect.
  • James Law, Karen Bunning, Ros Bryar and Bob Heyman from City University.
  • People with aphasia from Connect took part in interviews and working parties, commenting on the development of the resource.

Who funded the projects?

  • Having a Say was funded by the Department of Health 'Health in Partnership' Initiative (finished January 2002)
  • Making Sense was funded by the London Region of the NHS (finished January 2003).