What happens to people with severe aphasia?

What the project was about

  • Exploring the day to day life of people living with severe aphasia.
  • Seeing how people with severe aphasia are included or excluded.

What the project found out

  • Many people living with severe aphasia are isolated and left out in day-to-day settings and encounters.
  • People with severe aphasia are often excluded from work, choices and decisions, control, contact, recognition and respect.
  • Participation in life for people with severe aphasia is difficult, but not impossible.
  • Training, education and support for everyone affected (families, friends, staff in social and health services, shops etc.) would help.

Who has been working on the project?

  • Susie Parr, Sally Byng and Carole Pound from Connect.
  • Colin Barnes and Geoff Mercer from the University of Leeds.
  • The advisory panel, Alex O'Neill, Cressida Laywood, Carol Watson, Tony Moor, Lynne Andrews, Alan Hewitt (including people with aphasia, some from Connect).

Who funded the project?

The Joseph Rowntree Foundation (1999 to 2002)