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Research

Having a Say and Making Sense

This research was about the experiences of communicating and making decisions in health care for people with communication disabilities and service providers. What resources might help people with communication disabilities and service providers to communicate more effectively in health care settings?. The first project - Having a Say - explored the perspectives of people with communication difficulties and service providers. It identified problems and also found out what helped. The second project - Making Sense - explored the experiences of a wider group of people with communication difficulties and of carers. A blue-print for a resource to support communication in GPs surgeries that came out of this project is being further developed in our new project Health Talk.

Who is involved: Sally Byng and Susie Parr from Connect, James Law, Karen Bunning, Sharon Farrelly, Bob Heyman and Ros Bryar from City University, Louise Fitzgerald from De Montfort University, Sara Ross, and people with aphasia and their relatives

For further information about this project contact: [email protected]

Research publications from the project
Byng, S., Farrelly, S., Parr, S., Fitzgerald, L., Ross, S. (2003) Having a say: Promoting the participation of people who have communication impairments in health care decision-making. Final Report to the NHS Health in Partnership Research Programme. Department of Health

Law J, Bunning K, Byng S, Farrelly S, Heyman B. (2005) Making sense in primary care: levelling the playing field for people with communication difficulties. Disability & Society, 2005; 20; 2: 169-184

Law J, Bunning K, Byng S, et al. (2005) Making sense in primary care: the challenge of negotiating health when you have a communication disability. J Intell Disabil Res 2004;  48: 323-323

Research funded by: The Department of Health, The London Region of the NHS

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