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What happens to people with severe aphasia

This research explored the day-to-day life of people living with severe aphasia. The project was about seeing how people with severe aphasia are included or excluded. The project found that many people living with severe aphasia are isolated and left out in day-to-day settings and encounters.People with severe aphasia are often excluded from work, choices and decisions, control, contact, recognition and respect. Participation in life for people with severe aphasia is difficult, but not impossible. Training, education and support for everyone affected (families, friends, staff in social and health services, shops etc.) would help.

Who is involved: Susie Parr, Sally Byng and Carole Pound from Connect. Colin Barnes and Geoff Mercer from the University of Leeds. The advisory panel, Alex O'Neill, Cressida Laywood, Carol Watson, Tony Moor, Lynne Andrews, Alan Hewitt (including people with aphasia, some from Connect).

For further information about this work: [email protected]

Research publications from the project
Parr,S. (in press) Living with severe aphasia: tracking social exclusion. Aphasiology. Find out more about this in the Aphasiolgy Journal published by Psychology Press
Parr,S. (2004) Living with severe aphasia: the experience of communication impairment after stroke. Brighton, Pavilion Publishing.

Research funded by: The Joseph Rowntree Foundation

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